Life

Here it is, Friday night. We went out as a family for a little while. Did a little shopping, mostly window shopping. But, I did get Alexis some art supply's. She wanted some Art canvas', chalk and ink to do some rubbings. So of course I couldn't say no to that.

She is quite the little artist. I'm so excited to see her blossom even more. That's all she wants to do in life, she is always doing something artistic or crafty!

I'm hoping some day that we will be able to have a larger home, maybe a room that is for crafts.
It's difficult to pull everything out each time. If we had a room just for the crafting, we could just leave it and come back to it.

I'm sure that I'd get more done than I do now. We just don't have the space.

I'm very grateful to what we do have, not owe any money on it at all. But looking forward to the day when we have a bigger place.

I know that God is working in us. And we have to be patient. It's all on His time. Sometimes that is hard, but then I remember all He went thru. And have to realize that He has a plan for us.

I keep thinking of all Alexis has been thru in the last year to year and a half. 2nd grade was pretty good. Minus the girl drama. That was terrible. I'm sure there will be more of that in the future....but hopefully not. I can certainly do without that! Alexis did make a fantastic friend. Unfortunately, she moved, but the experience was well worth it. She has those amazing memories.
Bully's are just insecure people. They must just feel so little, so they feel the need to hurt others feelings.

Third grade has been better for the most part. Minus the "boy" drama. Yes, that's right. Boys are already interested. I had to step in after I was told by someone else that Alexis was being touched inappropriately!

Alexis was diagnosed with some new things just last week. :(
So now she has: Chiari Malformation, Syringomyelia, Ehlers Danlos Syndrome, Hemihypertrophy, & Hyperplasia.

I can tell you that we go through enough with just her health. I envy those whose kids just get a cold, flu, virus or something little like that. When my kid gets sick, it can attack & hard.
Alexis got strep throat last year, it tested negative for over a month. Then finally when it did test positive, it blew into Scarlet fever. She was sick from May 13th to first week of July!

It's hard to see your child Chronically ill all the time. You can feel so alone. Like others don't understand...or just those few that are going through something similar.
I have some friends on FB whose children have similar situations. I can easily talk and listen to them.
They aren't judgmental, and don't tell me that I'm over reacting or geez well she "looks" fine! I hate that one the most.

You cannot see Alexis' health problems. Well you can see it in the Xray's, MRI's, etc. Or if you KNOW what your looking for and understand the diseases.

If you DON'T understand them, than of course you can't see it. Gosh, I just want to say, HELLO??? Where's your darn chiari, syringomyelia, EDS, hemihypertrophy degree???? Do you know what they are? Do you know how badly they affect her body? NO! And that's usually people who are perfectly healthy! Or have little health problems>>>> I'd never go around telling someone, OH well you LOOK Just fine, what's your problem!!! How RUDE!

Just sayin!

So the other night, 2 guys about college age were bullying my husband. YEP, well trying.
Anyway, we were at the store tonight. And Alexis and I were walking in front of Chris.
I hear this guy say, Hello, How are you????
I was thinking it was a guy who worked at Walmart but it wasn't .
Chris was behind us, didn't say anything
I almost said, Fine thanks....but
then the guy blurts out REMEMBER ME?????
Chris says Yes!
And I stopped to see who he was cause I didn't know what was going on...
they guy looked at me and realized I was with Chris. And walked away...........
Chris says, that was one of the guys who was making fun of him the other night at Ross.
Once the bully saw that Chris wasn't alone, he walked away.....GOSH I wish I knew that he was the bully before all that.
JERK I hate people who are so mean. I pity them.
I wanted to say so much! Alexis said, Momma I'm scared of him! I told her it was ok.
Frickin bully's at all ages. We don't have time for that type of drama at all!!!